Winston Churchill said, “We make a living by what we get, but we make a life by what we give” and that seated value of giving for me was found in the Administration and Community Practice program at OU. The program represented everything I desired to do with my life; to be a “Servant Leader” for larger groups, organizations and communities. The education and knowledge I gained through the program provided the tools needed to develop and organize Supporters of Families with Sickle Cell Disease, Inc. Dr. Gray once told me, “the most powerful advocacy is telling your story”. My passion for sickle cell disease was birthed out my own personal struggle, when my son Jeremiah was born and diagnosed in 2004, with the condition. Serving families within the sickle cell community has taught me so much about social justice and social change. I have a greater level of understanding, compassion, and what it truly looks like to help others in vulnerable populations gain their voice.
The rebirth of the sickle cell organization begun while I attended OU. Through the advice and guidance of the professors in the ACP program, Supporters of Families with Sickle Cell Disease, Inc., became the center for community education. Supporters is the onlycomprehensive community based non-profit, grassroots advocacy organization which serves individuals and families impacted by sickle cell, thalassemia, and cc disease and trait in Oklahoma. Supportersiscontracted with the Oklahoma Health Care Authority providing consultation services for the Oklahoma Sickle Cell Community.These accomplishments are directly linked to what I learned in the ACP program and although these are wonderful accomplishments the most powerful thing I learned was to tell the story.
In honor of National Sickle Cell Awareness Month,Supporters of Families with Sickle Cell Disease is preparing for the 2nd Annual Sickle Cell 5k Walk, Run or Jog for a Cure and Community Awareness Bazaar. Supporters would like to invite you to join us and support those in the Oklahoma Sickle Cell Community. Come out and help them continue to gain their voice.
Saturday, September 5, 2015
Registration 7:00 am
Event 9:00 am
- Velvet Brown, 2009 MSW Alumna
Posted on Tue, September 1, 2015
by Amy Arnold filed under